“Perspective is a powerful tool in the arsenal against grief.”
Becky A. Benson
Writing is an expression of the soul.
An act of service, and one of love.
Writing is my refuge. A place to exist without condition. Somewhere I can freely process my thoughts, and move through an understanding of my emotions. Writing is where I come closest to exposing my rawest grief, my biggest fears, innumerable faults and failures, and my greatest loves. Writing is the place where I can fully examine my heart. Where I am stripped bear of the surrounding world and find solace with nothing more than my innermost thoughts.
I tend to write most often about living life in your own skin; concerning the human condition and human connection. I find I take the most comfort in grief writing because it’s the emotion I feel so keenly. And truly, when you boil it down, what is grief, exactly, but an outpouring of the abundance of love.
I invite you to take this journey of exploration with me. You don’t need to lead, or follow. All I ask is that you walk beside me.
Recent:
Advocating for Access to Equitable Carrier Screening
Becky serves on the Access to Equitable Carrier Screening Coalition advocating for access to equitable carrier screening for all.
Recent:
Attending the Global Genes RARE Patient Advocacy Summit
Becky shares her experience as a panelist in a blog for Global Genes, and advocates for the rare community in a video produced by Global Genes. Read the blog in the headline link, and see the video in the button below.
Recent:
Beauty in the Being Podcast, Ep. 12
The holidays are a time for connecting with family and counting our blessings but this can also be a challenging time of year for those grieving the loss of a loved one.
Heidi talks with Becky A. Benson about the loss of her daughter and how she is using her own personal experience to help others who are grieving.
Two Disabled Dudes Podcast, Ep. 153
My work is made meaningful by continuing to honor my daughter’s memory and extend her legacy by helping other families facing rare a diagnosis and loss. During the NTSAD Annual family Conference in May, 2021 I was grateful to be a small part of the panel discussion that has since become episode 153 of the Two Disabled Dudes podcast.
Once Upon a Gene TV, Ep. 5
A Discussion of Rare Disease, Coping and Grief.
I’m thrilled to have recently been asked to join the hosts of Disorder Rare Disease Films’ One Upon A Gene TV for a special episode focusing on rare disease, coping, and grief.
Webinar:
A Conversation on Grief and Resiliency.
I was thrilled to be moderate this webinar, Choosing Resiliency in the Face of Adversity between two women I greatly admire, Sheryl Sandberg (COO Facebook, Option B) and Blyth Taylor Lord (Courageous Parent’s Network), and to share a bit of my perspective on grief.
